[Menvi-discuss] Update On Me

Fri May 11 10:30:56 PDT 2012

I know braille and basic braille music not that there are not enough 
trumpet jazz scores to pass around...mostly classical and the arban 
method for trumpeters.

--
"Passion is a great motivator. Music is a life-long learning experience."
--
Chela Robles
Facebook/Linked-In/E-mail: cdrobles693 at gmail.com
Windows Live Messenger: cdrobles693 at hotmail.com
Skype: jazzytrumpet
Learning Ally Blog A Lady And Her Trumpet feel free to post comments by filling out the form on the page at: http://tinyurl.com/84tucwv
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--

On 5/11/2012 10:54 AM, Debra Baxley wrote:
> If you don't know Braille music, you'll be learning it; concerning life, it
> will have a different perspective!
>
> You'll also be learning Braille, which will be very interesting.
>
> Debra
>
> -----Original Message-----
> From: menvi-discuss-bounces at menvi.org
> [mailto:menvi-discuss-bounces at menvi.org] On Behalf Of Chela Robles
> Sent: Friday, May 11, 2012 11:42 AM
> To: This is for discussing music and braille literacy
> Subject: Re: [Menvi-discuss] Update On Me
>
> LOL just take out the music and life eh? But that is just part of it!
> Being facetious, are we not?
> Thanks guys, I consider you all my music family, if you don't mind at
> all that is thanks much for your lending support and smiles...I greatly
> appreciate it...and I'm not just saying that either!
> I mean it!
> I slept with this gel eye mask last night and it helped me a great deal
> so did the sun glasses I bought. I'm going to try tylanol and eye drops
> today not just eye drops, better to try alternatives than decide here
> and now to go prosthetic...waying out my options first...smiles! Thanks
> for cheering me on and being resourceful.
> I still play my trumpet during the day to keep the stress levels down
> and it helps me and motivates me and I talk to God too.
>
> --
> "Passion is a great motivator. Music is a life-long learning experience."
> --
> Chela Robles
> Facebook/Linked-In/E-mail: cdrobles693 at gmail.com
> Windows Live Messenger: cdrobles693 at hotmail.com
> Skype: jazzytrumpet
> Learning Ally Blog A Lady And Her Trumpet feel free to post comments by
> filling out the form on the page at: http://tinyurl.com/84tucwv
> I volunteer for Bookshare, to find out more and to volunteer with us,visit:
> http://www.bookshare.org/
> Join us in celebrating our 10th Anniversary!
> http://tinyurl.com/752cyrs
> Need more space, come join dropbox and start with two gigs of free space as
> is this is my referral link to you: http://db.tt/XpUTe0E
> --
>
>
> On 5/11/2012 3:09 AM, Dale Lieser wrote:
>> grande caramel macchiato is a good motivator, cinna stack is a life-long
>> yearning experience.
>>
>> -----Original Message-----
>> From: menvi-discuss-bounces at menvi.org
>> [mailto:menvi-discuss-bounces at menvi.org] On Behalf Of Chela Robles
>> Sent: Friday, May 11, 2012 12:32 AM
>> To: This is for discussing music and braille literacy
>> Subject: Re: [Menvi-discuss] Update On Me
>>
>> Hello, I guess I should let you know I'm not a candidate for such
>> transplants I was born 25 weeks early hence therefore having detached
>> bunched up retinas was 1 pound April 6 1985 however if they have had the
>> technology they do have now, all this could have been prevented.
>> I'm really going to be thinking about this for quite some time now...but
>> on a good note, I had me some comfort food and beverage: first I went to
>> Starbucks and got a grande caramel macchiato and lemon loaf, then for
>> dinner I had a cinna stack at IHOP which is four buttermilk pancakes
>> with cinnabon cinnamon frosting and filling in between each pancake, so
>> now I'll go to bed and wake up fresh tomorrow.
>>
>> --
>> "Passion is a great motivator. Music is a life-long learning experience."
>> --
>> Chela Robles
>> Facebook/Linked-In/E-mail: cdrobles693 at gmail.com
>> Windows Live Messenger: cdrobles693 at hotmail.com
>> Skype: jazzytrumpet
>> Learning Ally Blog A Lady And Her Trumpet feel free to post comments by
>> filling out the form on the page at: http://tinyurl.com/84tucwv
>> I volunteer for Bookshare, to find out more and to volunteer with
> us,visit:
>> http://www.bookshare.org/
>> Join us in celebrating our 10th Anniversary!
>> http://tinyurl.com/752cyrs
>> Need more space, come join dropbox and start with two gigs of free space
> as
>> is this is my referral link to you: http://db.tt/XpUTe0E
>> --
>>
>>
>> On 5/10/2012 6:11 PM, Ben Humphreys wrote:
>>> Dear Chela,
>>>
>>> First off, let's not discount the benefit of light perception. Mine
>>> comes and goes and I can assure you that all steps I've taken to date,
>>> which have been lengthy, tedious, and expensive are worth it when I
>>> can, just every now and then, make out a window frame or the coffee
>>> maker. It's like there's still a connection to the visual world,
>>> meaning hope for the future.
>>>
>>> Second is the question of whether you've ben blind since birth or had
>>> the benefit of developing your visual cortex from say age 0 to 6 or 10
>>> or so. If your brain knows "how to see", developed during this early
>>> age, then this would be an argument in favor of preserving your "good"
>>> eye or both.
>>>
>>> Also, if your optic nerve is intact, that would be another argument in
>>> favor of preserving your "good" eye or both.
>>>
>>> Finally, see at least 3 specialists before making an irreversible
>>> decision such as this. I think you're in California so your very best
>>> opthalmologists are likely to be in San Francisco. Spend the time and
>>> money to make the trip because a year from now, you'll have forgotten
>>> the money and the time but the decision to go prosthetic is forever.
>>>
>>> While it's true that occularists paint very convincing prosthetic eyes
>>> (I've had the same one since I was 10), they tend to weep or dry a
>>> little. Probably nothing like the pain you're going through now
>>> though. As for popping them out at parties for conversation, I've
>>> found the shock value to be somewhat traumatizing to the
>>> non-initiated. So that's not a benefit.
>>>
>>> Each of us has different circumstances and prognosis with our eyes.
>>> The strategy that I've always pursued is to maintain as much function
>>> and natural tissue as possible so that when new therapies, stem cell
>>> regeneration, and even eye transplants hit, you've got the best chance
>>> of taking advantage.
>>>
>>>
>>> One of my best eye docs, a world-class respected opthalmologist in New
>>> York City predicts 20 years to stem cell success, and another 5 years
>>> for eye transplants. So he still thinks the stem cell stuff is a long
>>> way off, at least for glaucoma. I think we're much closer for
>>> retinitis pigmintosa and macular regeneration.
>>>
>>> But closer stilll are higher resolution artificial retinal implants if
>>> one can preserve the retina. Barring a functional retina and optic
>>> nerve, there's some exciting work going on at Monash University
>>> regarding a direct to brain bionic eye. They're looking at the first
>>> human implant in 2013 and possible commercial deployment within 5
>>> years. The Monash direct-to-brain bionic eye is particularly
>>> interesting because it augments, but does not require a functioning
>>> eye or optic nerve.
>>>
>>> All of these biologic regeneration or artificial vision ideas
>>> pre-suppose the brain knows "how to see", developed between about age
>>> 0 and 6 to 10 years of age. The jury's still out on whether artificial
>>> vision can be interpreted by a brain that's never "seen" before.
>>>
>>> Finally, many of you may have heard about the "Brainport" tongue
>>> stimulator which captures images from a glasses-mounted small camera
>>> and "paints" the light and dark image on the tongue, a sensitive part
>>> of the body. I'm in a clinical trial for this device, and although
>>> I've been discouraged from discussing results publicly, I can say it's
>>> not a panacea. They, like Monash Vision Group, have iterations to work
>>> through, filters and smart learning algorythms to apply, higher
>>> resolution to achieve, and most importantly, human factors issues such
>>> as appearance and comfort to improve upon.
>>>
>>>
>>> In sum, I guess I'm not offering prayers or empathy, but the best
>>> scientific knowledge and advice I've been able to gather over the last
>>> several years of my own experience going blind. Do the work to see the
>>> specialists, ideally at least one in San Francisco,and then go with
>>> your gut.
>>>
>>> By the way, I have one prosthesis and one biologic eye, now blind from
>>> glaucoma. Rational or not, I feel the biologic eye, if we can just
>>> keep it limping along, has the best chance for rescue/regeneration.
>>>
>>> Hope this helps,
>>>
>>> Ben
>>>
>>> At 03:51 PM 5/10/2012, you wrote:
>>>
>>>> Greetings,
>>>>
>>>> As you may recall, I told you that I have some eye issues: burning
>>>> hot sensation, feels like sand in my eyes and itches.went to the
>>>> opthamologist on April 12, found I have light perception only in my
>>>> right eye now whereas it used to be in both, then was referred to an
>>>> eye specialist for a v scan which is an ultrasound on my eyes where I
>>>> went Monday, now just went back to my opthamologist to see what he says.
>>>>
>>>> Well I have some bad news regarding my eyes. I have to make a
>>>> decision about whether or not I can live with my eyes the they are,
>>>> or to get prosthetic eyes, due to the fact I have Phthisis eyes, but
>>>> am now being referred to another eye doctor to confirm and suggest
>>>> what needs to be done, and the thought of getting prosthetic eyes
>>>> doesn't set well with mom and the fact that God would not be able to
>>>> heal them if my eyes are removed is something to consider prayerfully
>>>> what I can and cannot deal with, whether this is annoying or whether
>>>> I need to have them removed. Please join me in prayer for this
>>>> reason.I see the other doctor June 8th at 1:20 PM.
>>>>
>>>> Thank you for your support.
>>>>
>>>> Phthisis bulbi is a shrunken, non-functional eye that results from
>>>> severe ocular disease, inflammation, or injury.
>>>>
>>>> Sincerely,
>>>>
>>>> Chela Robles
>>>>
>>>> -- 
>>>> -- 
>>>> "Passion is a great motivator. Music is a life-long learning
>>>> experience."
>>>> -- 
>>>> Chela Robles
>>>> Facebook/Linked-In/E-mail:
>>>> <mailto:cdrobles693 at gmail.com>cdrobles693 at gmail.com
>>>> Windows Live Messenger:
>>>> <mailto:cdrobles693 at hotmail.com>cdrobles693 at hotmail.com
>>>> Skype: jazzytrumpet
>>>> Learning Ally Blog A Lady And Her Trumpet feel free to post comments
>>>> by filling out the form on the page at:
>>>> <http://tinyurl.com/84tucwv>http://tinyurl.com/84tucwv
>>>> I volunteer for Bookshare, to find out more and to volunteer with
>>>> us,visit:<http://www.bookshare.org/>http://www.bookshare.org/
>>>> Join us in celebrating our 10th Anniversary!
>>>> <http://tinyurl.com/752cyrs>http://tinyurl.com/752cyrs
>>>> Need more space, come join dropbox and start with two gigs of free
>>>> space as is this is my referral link to you:
>>>> <http://db.tt/XpUTe0E>http://db.tt/XpUTe0E
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